Lei nº 14.593 de 02/06/2023. Altera a Lei nº 13.693, de 10 de julho de 2018, para instituir a Semana Nacional da Informação, Capacitação e Pesquisa sobre Doenças Raras e alterar a denominação do Dia Nacional de Doenças Raras.
LEI Nº 14.593, DE 2 DE JUNHO DE 2023
Altera a Lei nº 13.693, de 10 de julho de 2018, para instituir a Semana Nacional da Informação, Capacitação e Pesquisa sobre Doenças Raras e alterar a denominação do Dia Nacional de Doenças Raras.
O PRESIDENTE DA REPÚBLICA
Faço saber que o Congresso Nacional decreta e eu sanciono a seguinte Lei:
A ementa da Lei nº 13.693, de 10 de julho de 2018, passa a vigorar com a seguinte redação:
“Institui o Dia Nacional da Informação, Capacitação e Pesquisa sobre Doenças Raras e a Semana Nacional da Informação, Capacitação e Pesquisa sobre Doenças Raras.” (NR)
O art. 1º da Lei nº 13.693, de 10 de julho de 2018, passa a vigorar com a seguinte redação:
“Art. 1º Ficam instituídos o Dia Nacional da Informação, Capacitação e Pesquisa sobre Doenças Raras, que será celebrado, anualmente, no último dia do mês de fevereiro de cada ano, e a Semana Nacional da Informação, Capacitação e Pesquisa sobre Doenças Raras, que será realizada, anualmente, na última semana de fevereiro.” (NR)
Esta Lei entra em vigor na data de sua publicação.
Brasília, 2 de junho de 2023; 202º da Independência e 135º da República.
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